Tuesday, November 3, 2009

Hopeful

I started this blog because my best lymie friend Nicole told me it helps so much just to express herself so I thought I would try it out. Also I can keep people updated on how I'm doing.
The past week has not been a good one. I have been more than usual tired. When I wake up I feel like I just ran a marathon. Some nights I can only get 1-3 hours of sleep and the pain makes it impossible to sleep anymore, and some nights I can sleep 12 hours and feel like I hadn't slept at all and that I could just sleep all day. But I cant live my life in bed everyday.
There is over 70 horrid symptoms I have from lymes disease. It would be SO much easier to live with all the symptoms if i could just get rid of the one most horrible one which is the burning/horrible aching/etc pain all over that makes it so I cant even move if I dont take my pain medicine...But that just takes the edge off so I can push through. Its so hard push through this.
I can laugh and smile and be happy but inside I am in soo much misery. I wish people understood but they wouldnt get it unless they got lymes disease and I dont want them to because it really really hurts. This lyme quote is so true: "You dont get it..Unless you get it. But I hope you don't."
It is so hard to stay positive. I have been so much more positive since I met Nicole who is my age and has lymes disease. She helps so much just to talk to her because she knows exactly what I feel like. We love the same stuff and everything. She is SO much more positive than me. YOUR MY HERO NICOLE!!!!

7 comments:

Robnz Fam said...

Yeah, no more late nights for either of us ok?

:0)

love you.

SAYDA said...

Hey Sara, I'm glad you started this blog! I think when you are going through anything in your life that is hard and painful, it is good to write about it. I'm also so glad that you are educating others on Lyme's Disease. I'm so sorry it took so long before they diagnosed you with it.

I put your link on my side bar and I plan on following you in this journey.

Love, Sayda

Robnz Fam said...

I've left this up all morning so I can listen to your playlist :)

Miss you! Wake up so you can come chillax w/ me!

Bridget said...

Sara! I am so glad that you commented on our blog so that I could find yours. I was bummed that I couldn't go to the movie with you guys, but we will have to hang out again sometime soon. I had no idea what you had really been through. And I think you are so brave. I think it is amazing of you to put all of this stuff up on your blog, and help people get educated.

You are still in our prayers!

SaRa MaRiE said...

Carrol: Its not my fault I cant sleep!!! Haha. loVE YOU!!!

Sayda: I agree. The sad thing is that tons of lymes disease take a long time to get diagnosed or just stay with the diagnoses that they are crazy. Thank you!!! I have your link on the side of my blog also.

Bridget: Yeah you'll definatly have to go with us next time!!! Thanks!! You are such a sweetheart!

Martha said...

Sara--thanks for letting me know about your blog! I'm sorry it's so miserable for you. I tell my hospital patients this a lot, but I really admire people who handle being sick so well. You're amazing.

SaRa MaRiE said...

Martha, Thanks!! Are you a nurse??